Tag Archives: neurofibromatosis

When I’m Gone


I’ve been thinking a lot about what would happen to my kids if Eric and I should meet an untimely end together.  Besides Roman, I have two other children, one with special needs.  Tycen has Neurofibromatosis which has led to … Continue reading

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An interview with the sandwich kid


My five year old, Tanis, is neurotypical.  That means that she’s not on the autism spectrum.  I attended a seminar that labeled children like Tanis “Sandwich Kids” because they get sandwiched by the disabilities of their sibling or siblings.  Often, … Continue reading

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Normalcy, or something close to it


Sometimes it’s hard to remember that we are about more than just Roman’s autism.  It becomes all encompassing.  It use to be that way with Tycen’s neurofibromatosis.  When he was going through all of his surgeries, life was all about … Continue reading

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